Health

'Bucket list baby' inspired prayers, compassion and sensitive coverage

Shane Francis Haley's life lasted less than four hours, cut short by a birth defect. Yet he and his parents reached hundreds of thousands of people through social media -- people who were first touched by the "bucket list" of experiences they gave their son before he was ever born.

That's one marvel of the drama that played out in Media, Pa., as Jenna and Don Haley updated their 700,000 Facebook friends over the prenatal months. Another marvel: the simple news narratives -- including Reuters and the Christian Science Monitor -- that told the story without adding some religio-socio-politico-economic payload.

With a story about a doomed infant, it's almost too tempting to resist the urge to add tear-jerking prose. Remarkably, the writers of these stories do resist. In the best tradition of journalism, they let the details carry the emotional weight. Closest to any gimmicky writing is the headline on the Monitor article: " 'Bucket list baby' inspires thousands. Here’s what his parents did."

When the Haleys heard the diagnosis of anencephaly -- in which the baby lacks part of its brain and skull -- they knew it was a death sentence for Shane. Yet instead of planning an abortion, or sinking into grief or rage at God, the parents went through a "nine-month bucket list," as the Monitor dubs it: giving their son the time of his life before he was even born.

From the Monitor's account:


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Rather generic God urges son of first U.S. Ebola victim to rush to Dallas hospital

What we have here is another case of what we could call "generic-god syndrome." That's when claims of divine guidance or deliverance are important enough to feature in a mainstream news story, but not important enough to define with facts -- perhaps with a single clause in a single sentence.

Most of the time we see generic-god syndrome in sports coverage, or stories about the Grammy Awards. The stakes are much higher in a news story about Ebola.

As a former GetReligionista put it in an email: "Did the dallas ebola patient have faith? ... Looks like his son did ... maybe that offers a clue?" In this case, our former scribe was talking about material strong enough (yet it still needed to be vague) to provide the human-interest hook for a CBS News story.

Here's a large chunk of the story -- about the death of Thomas Eric Duncan -- to provide context. This comes right after the lede:


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